Morgellons movie to premiere in Los Angeles October 5
skin-deep-morgellons
The documentary Skin Deep: The Battle Over Morgellons will celebrate its world premiere on October 5th at the Awareness Film Festival in Los Angeles.
Skin Deep was directed by Emmy-winning editor and filmmaker Pi Ware. The film investigates the fierce controversy surrounding the disease known as Morgellons.
Morgellons disease symptoms include fatigue, slow-healing lesions, GI disturbances, and—most notably —fibers growing from patients’ skin.
Morgellons became controversial when a large portion of the medical industry declared those symptoms to be nothing more than products of delusional minds.
Singer Joni Mitchell may be the most famous of the victims of Morgellons disease, but there are tens of thousands of people who currently suffer. Multiple studies put the estimate at 18,000 new cases a year.
Recent peer-reviewed scientific evidence that links Morgellons to Lyme disease has proven that the source of the suffering is biological–likely bacteria named borrelia. This suggests that there may be another delusion at play here: the denial of the science, symptoms and suffering of Morgellons patients.
Skin Deep began filming in the spring of 2015. The film follows several Morgellons patients and physicians who treat them—using antibiotics or anti-psychotics depending on the doctor’s belief system.
Two sides of debate
While the film gives voice to both sides of the debate, it focuses on the new science and the need for empathy for those patients mercilessly caught between doubt and a lengthy scientific process.
Says director Pi Ware, “With many new diseases, there is a period of time before the science of the disease is widely accepted, a time when doctors say, ‘What you’re suggesting goes against what I learned in medical school,’ a time when patients are vulnerable to the prejudice and arrogance of otherwise well-meaning physicians.”
Medical history is filled with similar examples: from ulcers (once believed to be caused by stress, now proven to be caused by bacteria) to multiple sclerosis (often blamed on “hysteria” until CAT scans were invented) to lupus (over 50% of all lupus patients have been told their symptoms are “all in their head”).
Adds Ware, “There exists a period of time when the victims of a disease are blamed for their disease, and the resulting shame, confusion and anger doubles their suffering. Morgellons patients are living in that time right now.”
https://vimeo.com/253542994#share
More Here:
https://www.lymedisease.org/morgellons-movie-oct5/?fbclid=IwAR06aJ7fvFcWPp36H6eU3xNRim0l10nCqf_AmYKLu_EHQtIbsy7SJK--uvY
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Those you will be able to meet from the movie at the premier in LA are as follows:
Cindy Casey, Nurse and whose story spurred much of the research forward so we will always be thankful for this!
Maryanne Middleveen, the microbiologist who helped to prove the connection to Lyme disease that is involved in Morgellons (probably why it is being swept under the rung, the connection to Lyme Disease, Book, "Bitten" explains)
Edward Hu a person whom I find particularly fascinating
Harry Quinn Schone whom I'm excited to find out his part in this as I've mot seen it as yet!
The director and the crew will also be there some I'm sure it will be an exiting time for everyone!
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Dear RM Agents and Readers,
One has to wonder how many times must the patient be proven correct in what they say is happening to their body before the established line of crap is $hit Canned!
Excuse my French; but 39 years of this ailment Morgellons and I've run out of patience. In many ways I'm more patient than the average person but come on what must a person endure and say before there longstanding issue is addressed????? and the folks with it are treated with compassion and caring?
Not just shoveled we understand the system is failed and we will help you, want to see our shrink. That happened about 3 years ago and I really thought the guy was kidding at first.
Many Blessings,
CrystalRiver
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