https://www.lymedisease.org/idsa-excluded-chronic-lyme/

IDSA guidelines process excluded chronic Lyme patients and their physicians

IDSA comments
The Lyme community has many objections to the latest Lyme treatment guidelines proposed by the Infectious Diseases Society of America (IDSA).

The following is an excerpt from a 58-page rebuttal filed by the Ad Hoc Patient and Physician Coalition. Spearheaded by LymeDisease.org and ILADS, the coalition includes over 40 Lyme patient advocacy organizations from the US and Canada.

The following section refers to the makeup of the guidelines panel itself. Yellow highlights have been added here for emphasis (not in original filing.)

The NAM [National Academy of Medicine] states that “[t]o be trustworthy, clinical practice guidelines should: (a) be developed by a knowledgeable, multidisciplinary panel of experts and representatives from key affected groups; (b) consider important patient subgroups and patient preferences, as appropriate; and (c) be based on an explicit and transparent process that minimizes distortions, biases, and conflicts of interest.” (IOM Report Brief 2011)

Please visit the link above so you can see the highlights in yellow: https://www.lymedisease.org/idsa-excluded-chronic-lyme/

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Dear RM Agents and Readers,

Just a guess here but if the financial gain is taken from this illness and all related illness's perhaps it would be OK to do the right thing again.

Otherwise it looks like those of us who have had it a long time are just being flushed.

Many Blessings,
CrystalRiver