Dear RM Agents and Readers,

This makes sense to me and I have far more faith in this than the tic born working group pointing at vaccines. This is the wrong group to push that crap on. (really I tried to support them but come on)

Many Blessings,
CrystalRiver
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Jenna Luché-Thayer. November 21, 2018

Friends,
Good news! The Wales Member of Assembly (Parliament) Julia Morgan sponsored a November 20, 2018 meeting on Lyme in the historic and beautiful Pierhead Building next to the Welsh Assembly in Cardiff, Wales.
The initiative to hold the meeting came from the hard work of Welsh Lyme, ME/CFS and Morgellons advocate Mark Morgan (no relation to Julia Morgan).
Mark invited Dr. Robert Bransfield to give an overview of the illness and distinguish the psychiatric complications from Lyme in contrast to misapplications of wrongful psychosomatic labels, such as Medically Unexplained Symptoms and Post Treatment Lyme Disease Syndrome.

Michael Cook, a UK expert on the poor reliability of the current two tier Lyme testing used in the UK (and worldwide) presented on the topic of diagnostics.
I presented on the World Health Organization's planned changes for recognizing Lyme in the new medical codes (ICD11) and how the ICD10 and previous versions of the ICD codes contributed to 14 human rights abuses across 11 human rights treatises and were based on corrupted and suppressed science.
Meeting participants included representatives from the National Health Service’s public health and scientific research divisions, the government's division of parks, general members of the public including advocates for ME/CFS and another Member of Assembly.
The participants stayed for some time following the presentations and Q & A to engage the advocates. The engagement included casual and friendly debates between the representatives from the National Health Services and the advocates.
Following her attendance of the Lyme meeting, Member of Assembly Julia Morgan immediately attended a General Assembly meeting where she requested to the Wales Assembly they host a debate on Lyme borreliosis.
She spoke of how Mark Morgan had been advocating to raise the profile and awareness of Lyme in Wales. Julia Morgan stated there is little known about Lyme by the general public and that the disease causes many complications and great suffering.
The initial response by the chair of the meeting was to speak of the public education that has been implemented.
However, I believe that Julia Morgan and advocate Mark Morgan will be able to secure this Assembly debate in Wales. As Julia Morgan said in her presentation to the Wales Assembly, [paraphrased] ‘there have been recent Lyme debates held in the Scottish Commons, the UK House of Commons, the UK House of Lords and the European Union Parliament’.
In closing, it is clear that advocates need to press forward with political mobilizing and lawsuits against fraud and other corrupt practices that abuse the human rights of this patient population.

These kinds of political and legal actions are proving to be more effective for prioritizing and addressing patients needs than depending on 'entities required to address Lyme' such as the US Tick Borne Diseases Working Group and the UK's NICE Lyme Guidelines Committee. Such entities have built in anti-patient bias because they are very polluted by a majority who deny:
—the uncontrolled spread of the epidemic
—many life threatening complications caused by the infection
—how the infection is able to persist and cause on-going damage following antimicrobial therapy
—the immunosuppressive nature of the disease
Additionally, many of the participants in the US Tick Borne Diseases Working Group and subcommittees appear comfortable taking 100s of 1000s and millions of dollars for Lyme research to produce nothing that benefits the patient populations.
In contrast, strategic political and legal actions by advocates can:
—set free long suppressed and valid science
—open access to existing and future diagnostic and medical care options
—secure our human rights.