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Lyme-A Closer Look, Lyme Co-infections Morgellons Disease From The UK

Posted By: CrystalRiver
Date: Monday, 5-Sep-2016 18:29:49

Lyme - a closer look, Lyme co-infections
Morgellons disease
Posted by VH on September 5, 2016

Morgellons disease affects a small percentage of people with Lyme disease and other tick-borne diseases. For this reason we are classifying it as a Lyme disease “co-infection”. So far its cause is not proven, and very little is understood about its aetiology.

Guest article written by Carl Pashley
What is Morgellons Disease?

Morgellons Disease (MD) is a multi-system illness uniquely characterized by the formation of unusual fibres within the skin. MD is a debilitating, painful and life impacting condition consisting of slow-healing skin lesions, overwhelming fatigue, GI disturbances and an array of neurological deficits. Patients with Morgellons may shed unusual appearing particles from the skin described as fibers, sand or seed-like, black specks, or crystalized particles.

The distinguishing characteristic of Morgellons Disease (MD) is the presence of microscopic or subcutaneous fibers sometimes referred to as filaments within the skin. Lighted microscopy (60-x minimum) enables better visualization of these unusual filaments, often-colored red, blue, black, white or clear, embedded in open skin lesions as well as their presence beneath intact skin. Skin fibres or filaments of various sizes can also be seen with the naked eye.
What is the cause?

Patients and physicians often misinterpret Morgellons symptoms as being parasitic in origin but researchers concur that no parasites are involved with the etiology of Morgellons. It has also been determined that there are no fungal components to the etiology of Morgellons.

Borrelia, a spirochetal bacterium, has been detected in all Morgellons study subjects so far. Borrelia is detected by multiple methods in abundance within Morgellons skin lesions including culture. Other bacteria commonly found in some but not all Morgellons skin lesions include H. pylori, Bartonella and Treponema denticola.
Visible symptoms

Research has determined that the filaments and shed materials are products of epithelial cells and are composed of collagen and keratin. Filaments can often be visualized stemming directly from cells and a retained nucleus can often be visualized at the base of the filament. The coloring of the filaments is not well understood but research has shown that the blue filaments contain granules of melanin.
How do I know if I have Morgellons Disease?

The key diagnostic criterion for Morgellons disease is the presence of unusual filaments beneath unbroken skin or projecting from skin. These filaments can best be visualized at 60-100 X magnification and often start out as small black specks poking out from the surface of the skin, often followed by fibres of various size, shape and colour.
Symptoms

Intense itching (not experienced by all patients)

Crawling sensations under the skin

Spontaneously–appearing, slow-healing lesions (not experienced by all patients)

Seed-like objects/ granules and black specks on/in skin (sometimes without skin lesions visible to the naked eye)

“Fuzz balls” on or in intact skin (sometimes without skin lesions visible to the naked eye)

Fine, thread like colored fibres beneath and/or extruding from the skin (sometimes without skin lesions visible to the naked eye)

Life-altering fatigue

Neurological impairment

Visual and hearing changes

Brain fog and diminished higher cognitive abilities

Hair loss

GI changes

Muscle aches and joint pain

General malaise; intense, life-impacting pain

Dental deterioration

Sleep disturbances

Psychiatric manifestations can include anxiety, depression, new onset of panic attacks, changes in behavior and personality. Some patients have been diagnosed with OCD, bipolar disorder and even delusional disorders can result if left untreated.

Where to get help if you have Morgellons disease

Facebook patient support group: Supporting Morgellons Disease UK

This is a support and discussion group, founded by a relative of a Morgellons patient. It is a private group, meaning anything you post in it will not be visible to non-members or any of your other Facebook contacts. The group focuses on published scientific evidence from reliable sources, and discussion of conspiracy theories or other unproven ideas is discouraged.

Email: CEHFUK@icloud.com

The Charles E. Holmann Morgellons Disease Foundation
Peer Reviewed Research papers

Bristish Medical Journal Publication: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4328066/

This paper is published in a British Medical Journal and it’s the strongest evidence available showing Morgellons is closely associated with active Borrelia infection in the skin.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4328066/

(Feb 12, 2015 – Exploring the association between Morgellons disease and Lyme disease: identification of Borrelia burgdorferi in Morgellons disease patients)

http://www.ncbi.nlm.nih.gov/pubmed/24715950

(January 2013, PubMed – Association of Spirochetal Infection with Morgellons Disease)

http://www.ncbi.nlm.nih.gov/pubmed/23326202

(January 2013, PubMed – Characterization and evolution of dermal filaments from patients with Morgellons disease)

http://www.prweb.com/releases/2012/6/prweb9616173.htm

(June 12, 2012, F1000 – Morgellons Study Cited by Faculty of 1000 Study of Emerging Skin Disease Among Top 2% Published)

http://omicsonline.org/2155-9554/2155-9554-3-140.pdf

(May 15, 2012, Clinical & Experimental Dermatology Research – Morgellons Disease: A Chemical and Light Microscopic Study)

http://www.ncbi.nlm.nih.gov/pubmed/22253541

(Nov 4, 2011, PubMed – Filament formation associated with spirochetal infection: a comparative approach to Morgellons disease)

Photograph by Michela Metcalf
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Related
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One Comment
Add yours

claire sidwell says:

September 5, 2016 at 4:14 pm

Thanks so much for writing this article! It would seem morgellons is even more of a dirty word than Lyme disease. I have suffered with morgellons since my tick bite and have not received any help from the NHS, since being misdiagnosed with folliculitis. I’ve emailed the link and joined the fb group too🙂 thanks again x

Reply

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